One size doesn’t fit all

I am totally behind more accessible housing and support any move that will increase accessible housing stock in this country. But one size does not fit all. I was a finalist in the Habinteg Essay Writing Competition 2020 and my essay explained that what is needed, as we look into the next 50 years of accessible housing, is variety. I argued for communities that cater for varying needs.

A point has been made that 1 new accessible home is planned for every 15 people over 65 by 2030 and that this is not enough. I would say this, surely the point is not about people over 65 but disabled people. Not everyone over 65 has mobility issues. Shouldn’t the real question be ‘how many people are there now in need of accessible houses and how many will there be by 2030?’ Then a further question is ‘what type of accessible housing is needed?’

One size doesn’t fit all. When I wrote this blog, we were staying at what was once an RNIB training centre and is now a hotel. So, the corridors are laid out to help blind and partially sighted people. This means there are white, raised strips at regular intervals along the corridor and on corners, the bottoms of stairs and by doorways. Obviously, these are really needed and helpful for blind and visually impaired people. The same is true for raised bumps on pathways by crossings generally that you will all have seen. But these kinds of bumps are very uncomfortable in a wheelchair. I would not suggest that they are removed as they are needed for other disabilities. But what benefits or is needed for one disability can be a limitation to another. I am sure that there are disability aids which are a problem to able bodied people too. I am merely pointing out that ‘one size doesn’t fit all.’

My point is this: we cannot say that we need more ‘accessible’ housing, nor that there are more disabled people needing accessible housing. What we can and must say is that there are a variety of needs in our society, among those needs is a pressing need for ‘accessible’ types of housing. Many types to meet many needs. Wheelchair accessible, accessible for blind and partially sighted, accessible for limited mobility, deaf, and various other needs. One size does not fit all. A ramp and a wet room are only really needed for mobility issues. Visual doorbells for hearing problems. Having raised floor markers would be a great boon in a house for visually impaired but a big problem to the comfort of a wheelchair user. That’s before you even look at the heights of units needed if you are in a wheelchair to those not in one. One size does not fit all. The problem is that often these issues are championed and put forward by people without a lived experience of disability. The designers often lack that lived experience, even if they have a second-hand knowledge from a family member or loved one.

The point I argued in my essay was that communities were the way forward. Communities of varying types of housing. When a new housing development is planned it should include all types of housing. Housing to suit families, single, couples, older generation, disabilities of various types including wheelchair users, people of all social backgrounds. If you mix people together rather than ghettoizing by need or age, then you create a supportive environment where people naturally form social networks. We have lost that sense of community and yet the recent pandemic demonstrates that we miss it and naturally want to re-create it.

In 2021 we moved to a new build house on an estate in Hartlepool. Our house was already accessible. It was M4 (wheelchair visitable). After a DFG grant and various other adaptations, it is now fully accessible for my power wheelchair. The community we live in is amazing. It has its own Facebook page. We have found people here to be the most friendly and helpful neighbours you can imagine. In Storm Arwen people turned up to help us. When we had Covid, neighbours have offered and done our shopping. People on the estate have helped us in more ways than I can count. It is a community, not just a group of houses. I feel as if we have moved to a living embodiment of the kind of place I wrote about in my essay. A group of people of all ages and backgrounds who care about and support each other. Ever day I read on the Facebook page about examples of that care and support in action between people on the estate.

Such communities as the one we now live in, don’t replace professional care services. They add to them. Because much of the care provided by professional agencies today is what was once done by friends and neighbours. I am not referring to washing and dressing people. That is a care agency or personal care role. But a world where you need to pay someone to visit you, or go shopping with or for you, seems very messed up. We have a massive care bill; I wonder how much of that bill is for services that most of us would have once seen as being neighbourly and friendly?

Community is at the very heart of care. I started by saying that one size does not fit all. Accessible housing and care needs vary by need. Many things we need are normal human interaction. Other things are more specialist. Each person’s needs are different. Because we are all different.

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Never Mind The Quality Feel The Length

A repeat of a post I did a while back:

Is quality a thing of the past? That seems a stupid question, after all everywhere you look things are advertised as luxury, professional or pro for short. Advertising tells us that things are built better, stronger, more durable… yeah right, we all believe that don’t we? In fact we have become the quality control department for most products. Instead of manufacturers checking them, they are sent as is and fail in our home. We then send them back or bin them. Built in obsolescence. Never mind the lack of quality feel the short product life.


I have an NHS power wheelchair it’s a Quickie Salsa M2 and I am really grateful to have such an amazing tilt and tip wheelchair supplied. It’s transforms my life. But I cannot ignore that it seems to be very poorly made. I have had it for three years and well within the first year the frame started to move alarmingly, what I mean by that is it’s become loose and rickety. Add to that the paint peeled so badly that rust was the main colour visible on the frame.

I wonder if the NHS commissioners request poorly built? Obviously not, and when you consider that this chair is available privately and cost about £7000  for the setup I have, I do wonder at the excuse Quickie would have for what appears to be poor quality manufacture. I know the NHS get them for more nearer £4000 so do you think Quickie USA have two production lines? One that only applies one coat of poor quality paint and uses low quality parts that go to the NHS and a better line for private? I am of course joking, well half joking, they will make only one version. I can’t see how the NHS who are paying companies like Quickie a lot of money, can get such seemingly poor products from them. What is happening with the people who select these companies? Do they check on quality? Don’t tell me they are NHS products and I should just be grateful for any old tat. I told you these same chairs are available privately. They are merely bought by the NHS.


Don’t give me the argument about it being better if a private company is involved either, because I got my wheelchair through a private Company used by the NHS, Milbrook. So if private companies are really the way forward to drive up quality through competition and quality control I would be saying how wonderfully built my chair was. No, in reality all that privatisation does is add a profit layer into the mix. So that someone has to make profit out of the transaction. Ergo the end product has to be of a lesser quality because the amount of money being spent is the same, the product needed is the same, but someone in the middle is making a profit. Corners are therefore cut.


In case your wondering. I have part of the answer. The NHS and/or the private companies they use send out part reconditioned chairs. You might think that makes good economic sense. Have you heard the term ‘Life Cycle Cost?’ LLC. It is where a company assesses the total cost of a product over its life, not just its up front, capital cost. You include servicing and spares. Servicing includes the engineers and service admin. Spares are much more expensive than original parts. Even if you clean up and recycle a part that costs money. So LLC is high where a poor quality product is chosen. If you buy a good quality product, its capital cost can be higher, but its LLC lower. The NHS is short sighted. It only looks at capital spending. Why? Because LLC is spread out and seems better. In reality its not. More money is spent over a longer time.


Cars used to rust almost as soon as they left the showroom. Now cars are sold which boast of 7 and 10 year rust free warranties. Car parts used to fail within months, now they last much longer. The car manufacturers want people to keep buying new cars, but they do that by making new cars attractive and second hand cars hold value for re sale. Wheelchair manufacturer’s seem to have a very short term vision, sell their chairs to the NHS or desperate people who need them. Longevity of the chairs do not seem a factor, that is how it appears to me. Prove me wrong manufactures, show me how well you build your chairs.


That will not change until wheelchair users make a hue and cry and the NHS start to complain that they are not happy with the high failure rates. CCG’s (clinical commissioning groups) do you even track the failure rates of wheelchairs?


My fellow wheelies (wheelchair users for those who don’t know) take note of this. If you are an employee of the NHS and have any say in this process take note of this. If you are reading this in another country and have similar issues, take note. It takes a massive backlash to companies before they sit up and take notice.


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Star Wars

I have just watched Star Wars IV again. Something hit me that should be obvious to everyone. Luke says it to his aunt and uncle. It is something so stunning, that the whole plot falls apart. It means that whenever Darth Vader doesn’t need to interrogate rebels about the location of their base. Luke’s statement shows the a societal setup, in which being a rebel is just an educational option.

What on earth am I talking about? Luke says, ‘I want to transmit my application to the academy this year.’ Now unless you are going to tell me that Luke was going to the Empires Storm Trooper academy? No, of course not. We know he wasn’t, because when he finally gets to the rebel base, he meets all his mates who went ahead of him. He was planning on going to rebel academy. That well known educational establishment. One of many choices for young people in The Star Wars Universe. Do you want to go to Moisture Farming Tech College? Perhaps get a scholarship based on your droid racing abilities to a mainstream University? Or join your mates at Rebel Training Academy? The RSA (Rebel Scum Academy) as the Empire call it.

So, how should Darth Vader find the rebel base? Obviously, the academy would have promotional material. Advertising, on the Star Wars equivalent of social media, Spacebook.

I have a copy of the advert:

‘Fight The Evil Empire. Gain an education, travel the universe, make friends, become a hero. Visit us on Yarvin 4, or send a sub space message. May the Force be with you.’

Come on Darth, why didn’t you think of that?

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Now on Facebook

Let no one accuse me of rushing into things. I thought it was way beyond time that I had a social media presence (I’m even using the right terms). Mind you, at the moment it is just a copy of the posts on here.

I have a dream. I’m going all visionary now. I have a dream; see. I have a dream. That one day my Facebook site will have its own content. Oh, that wasn’t very exciting. Hardly worth waiting for.

I am told, that having a Facebook site, or any social media presence is advantageous. It is more immediate, more fun and best of all, it’s easier for me to use.

I am not technically challenged. In fact, I am quite clever with mechanical and electronic things. Sorry for the boast. But, I am useless at software. I have always been better at loading operating systems than using them. As for all those apps and programmes on the OS…

Websites, don’t even get me started on websites. In the past I could create a decent one. Then they made these amazing, all singing, all dancing ones. No problem you say, they have built in help systems. They almost create themselves; yeah right. They create themselves a very basic site. Not the one I want.

How did I start out telling you about my new Facebook presence and end up moaning about web site creation? It’s a funny old world.

Check out my new group at: https://www.facebook.com/Howcaring-114666084574910

Remember, the thing about Facebook is that it tracks you. If you say anything bad about my group, I will know. I will have your name, address, inside leg measurement… I am kidding of course. It only tracks likes and dislikes.

Life Is But A Dream

There are mornings that I wake up from a lovely dream. One in which I am walking, running, pain free. As I wake and turn on a light (by voice), the pain hits me first, normally through my eyes. Did you know, it’s not just love that hurts, light hurts too? My head joins the party next and I have not been at a party drinking the night before. So no excuse and nothing to blame. If my body is in an uncooperative mood (it normally is) it stays still for quite a while. When it does deign to move, it makes it’s presence felt. I guess it doesn’t want me to miss out on congratulating it for the effort of moving.

Once I have turned over. That is a big task in itself. Reached for the bed control and sat the bed up a bit. I skipped removing the CPAP. That’s the bit of equipment that keeps me breathing at night. Anyone with sleep apnoea will know about that. I then look around. No point looking at my tablet computer yet. My eyes can’t focus first thing. Just as well I have a good imagination, I just think.

It’s at times like this; every morning. That I have often contemplated the words of that song. ‘Row, row, row your boat.’ Actually, it’s not that bit I contemplate, that would be silly. I think about the words, ‘life is but a dream.’

As a Christian, I know life isn’t a dream. The Matrix is a great movie, but it’s just fiction. Life is reality, dreams are dreams. But as I transition from the sleeping/dream world into a rather painful and limited reality, I do muse. I muse about how nice it would be if this real world were the dream. If the dream world, of walking, running and being pain free were real.

I did not write this as a ‘feel sorry for me’ piece. Nor is it meant to be maudlin. But, if I never write the truth about being disabled and ill. You will think it is all laughs. I smile and laugh because I make that choice. Every morning as I lie in pain, I make that choice. Often I say to myself, ‘come on Michael, pull yourself together.’ I call myself by my full name when I want to chivvy myself along.

I don’t look down on those who can’t do that. Others suffer far more than I. We can never know what another person is going through. Don’t judge someone because they are angry with being ill, disabled or limited. I can’t know the pain of another; neither can you. I can’t understand what you are going through; it could be far worse than me.

If there is one take away message I would want to give, it’s this. I know that we all have struggles in life. Whether we are ill/disabled or not. Life can be hard for us all. Especially at the moment with all the financial burdens and stress.

Be kind to one another. Be gentle and caring. We all need the grace and strength to get through each day. Let’s help each other through it.

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False advertising

I was in a passenger in a car recently, after a long time stuck in bed. I noticed things I had missed before. Road signs that should definitely be highlighted to the advertising standards board.

One sign promises a magnificent Stag at bay. What a treat. Binoculars at the ready. Camera out and focussed. Where will this magnificent beast appear? Will it leap across the road? Should I look out for it on the grass verge, as it nibbles it’s mid morning snack. Will I catch it mid leap, as it sails over the hedgerow?

I can hear that you’ve already gone through this disappointment. You’re pretending that you always knew the truth. There was never a time when you took that sign literally. Your genius knows no bounds. I, on the other hand, am a mere mortal. My knowledge limited. I might even call myself a fool; before you do. Yes, I know now that the sign means wild animal. Now I realise that it means, watch out for anything from a field mouse to a hedgehog, crossing the road. Not exactly a look alike for a stag now are they? All very disappointing.

As if that isn’t bad enough. There is that wonderful sign for antique bellows, plate cameras.

You see them everywhere nowadays. Mary burst my bubble, she said they were telling us those dull grey or yellow boxes were coming up. Yes, speed cameras. In what way does that box with a flash built in, resemble a lovely old Victorian camera? What’s happening to the world?

Still, as we drove along, at least we had a shop selling fairy lights to look forward to.

But no, apparently that was just telling us the traffic lights was ahead.

Getting over that bitter blow, I saw a very exciting couple of advertising boards. The circus must be coming to town. Or a danger act. There are going to be flaming cars and motorcycles leaping across cars.

But apparently those are all just road signs too. Although why we need telling not to carry explosives in our car, I’m not sure. As for the flying motorcycle…

You don’t need to panic about me driving. I was told I couldn’t drive a long time ago; just as well eh?!

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Disability Top Trumps

Did you ever play that game as a child, ‘Top Trumps?’ It came in loads of forms, cars, boats etc. You would deal out cards that listed the specs of whichever list of things you were comparing and play. Let’s say you were playing with cars.

I would have a car with a 2 litre engine, 5 doors and a top speed of 95mph. So I would then decide to choose the engine size and say, 2 litre engine. My fellow players (I was a child, so it would be my brothers) then have to look at their hand of cards and see if they have a car with an engine bigger than that. It always seemed as if one of my brothers could trump me. They would have a V12 engine that had 3.6 litre engine.

You get the idea? Bigger is better. The person going first choses a particular thing, then other people can see if they can trump it.

I never knew until the other day that some people play that with disability. We were chatting to the wife of a disabled man who we had not met. She was checking an access door. We told her that it worked great for getting in to where she wanted to go.

Out of the blue. Instead of just saying thanks, or I knew that. She said, ‘my husband can’t walk or stand. He only has one leg.’ She looked rather accusingly at my two legs. I did wonder if I should hide one. Or just explain that I couldn’t walk or stand either. That was why I was in a wheelchair. But it seemed best to just carry on talking.

Somehow the topic got around to wheelchairs. She told us that her and her husband had every type of wheelchair going. A power chair, a motor scooter. I began to wish that I had brought my V12, 3.6 litre wheelchair out that day, the one with chrome exhausts. She was definitely trumping me. Not that I had realised the game even existed or that I was playing it.

Before our encounter with this lady, I always assumed that everyone had a different limitation, illness or disability. We all make the best of it. She seemed to be bringing a new ‘trump’ element into being disabled or ill. I should say here, that here husband was not with her. So he was not part of her ‘odd approach.’

A bit later we did see him with her; or rather behind her. He was trying to catch her up, pushing his self propelled wheelchair for all he was worth. She never mentioned they had one of those.

There is a moral to this blog. I think the lady in question was probably struggling with being a carer for a man in such need. When we saw him, he did look in need. He was not finding it easy to wheel himself. You might say, ‘why wasn’t she pushing him?’ Perhaps she was coming to the end of her tether. Her, rather unfortunate, way of coping. Was to leave him to struggle and create a make believe world of how great everything was. It struck me that she desperately needs help.

I do know this, a lot of carers, desperately need help. They have a massive weight on their shoulders. We are living in a time when there is a crisis in the support available. A shortage in funding and a shortage in people, linked to the first. The result will be seen in the near future as carers become those needing care. This is not a problem that can be ignored.

I wrote this blog in a deliberately satirical and humorous way to catch your attention. But the message is serious. Carers are struggling, they need help. Only political change can make that happen.

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M&M

Mary & I, M&M as it said on or wedding cake, were eating a pack of M&M sweets; snap. Yes, I know, I don’t eat sweets. I was having a momentary weak moment; I’m allowed. After all I am only human; honest.

As we were sharing this pack, sitting on a branch in a tree watching an outside movie. No… wait… that’s the movie I am about to quote. We were just sharing a pack of M&M’s, no trees were harmed in the writing of this blog. Have you seen the chic flick, ‘Wedding Planner?’ If not, you might as well stop reading this blog now.

I wasn’t serious, keep reading. I am quoting from Wedding Planner, but I will explain. Jennifer Lopez and Matthew McConaughey, are sitting in a tree watching a movie outside in a park; eating a pack of M&M’s. Matt, that’s what I call him whenever he pops around, is doing something odd. You might well say, ‘that’s not unusual.’ Well, just wait and see what he was doing. He was throwing all the M & M’s away. No, hang on, he was keeping the brown ones. He told Jen, that they were a better colour to eat as they had less artificial colouring in them. After all chocolate is brown. What brilliant logic.

Obviously, we get all our nutritional advice from the movies. I am sure you do too. So we were throwing all the coloured M&M’s away. Yes, of course its environmentally friendly. Hollywood stars did it and they all drive Prius’ after all. We then looked at the two, yes just two chocolate coloured ones left. One each, seemed a little amount out of a whole pack. So we picked all the other colours back up. The mud washed right off.

I looked at them and said to Mary, ‘yellow is a natural colour, just look at the sun.’ We ate those. ‘Red is natural, it’s the colour of fire,’ we ate those, ‘green very natural, it’s the colour of grass,’ we ate those, ‘orange is the colour of a cocoa bean husk,’ prove me wrong, we ate those.

There you go, we ate the whole pack, all fully natural. No waste, which is environmentally friendly. All natural colours, which is nutritionally good. I think I have proved that.

In future just take all your food advice from me.

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All Encompassing Fact

You are probably expecting an amazing fact. Not an unreasonable assumption. After all, I have brought you blogs on why we don’t live forever. How to keep things brief. The nature of the universe, among other incredible facts. But no, that is not the purpose of this blog. What is it’s purpose? I wish I knew, I started it so long ago, I’ve forgotten.

I’ve remembered. The brain is getting slower with age, but it is still sharp… ish.  When people ask to swap with me in a wheelchair. Which they do quite often, when they see me sailing up a steep slope. Did I tell you that my power wheelchair can go on water? Well, not literally sailing of course. But powering up a hill effortlessly. For me that is. My wife Mary, who is my full time carer. Has to walk alongside up the steep slope; or behind.

She is actually operating the controls. My chair is dual control (rear and side). I had to sign a bit of paper to the NHS saying, on pain of death. Well maybe not on pain of death, but it was a serious bit of paper. That I would not operate the power chair outside. Because I lose muscle function with very little warning. Those spoil sports didn’t like the idea of me powering into the road, or a crowd of people. I suppose they have a valid point.

As an aside, if Mary is behind my high backed power chair, people don’t see her. They assume I am controlling the chair. As you know, I do not have a sense of humour. So I never take advantage of that misunderstanding. You will never see me closing my eyes or looking all over the place, while my big heavy chair, heads towards a crowd.

If Mary is operating my chair from the control on my left (the one designed for my use in the house), that causes confusion too. She can only do it on wider pavements. People approaching us often assume she is just walking beside me. They are unaware that she is operating the chair. They walk straight at her, expecting her to move out of the way. Not just at her, but looking to pass between her and my chair. She has to let go of the controls and bring us to a sudden halt. This has happened when crossing a road; not my favourite experience.

Where was I. Yes, people saying they want to swap with me in my wheelchair, especially on a hill. I am not alone in this. Most wheelchair users get asked this. You might think, ‘so what?’ or ‘what’s the issue?’ you might even be thinking, ‘I’ve done that.’

Let me put it into a form that might hit home. If you wear glasses and someone said, ‘wish I had those?’ when they couldn’t see a distant object. Or you wear a hearing aid and someone said, ‘wish I could borrow that,’ for a short time they can’t hear a distant voice. Or how about you have dentures and someone at a restaurant, struggling to chew their meat says, ‘wish I could have your dentures.’

Those are silly suggestions, because its a silly question. Wheelchairs are not to get us up a steep hill. They are an all encompassing fact. My answer to anyone who says, ‘I wish I could swap with you,’ is this: ‘sure, you can have it all. The lifetime of limitations and the care needs.’ You don’t pick and choose a wheelchair to help you up a steep slope. It is a frustrating need. Just like you don’t choose poor eyesight or poor hearing. You don’t choose to lose your teeth. If you need a wheelchair, you would rather not. Having someone suggest a swap is fine, if they really wanted to swap everything. But of course they don’t.

An all encompassing fact, means just that. Limitation, illness, disability, differently abled, however you want to describe it. They are not a choice. Someone puffing up a hill and seeing, what to them looks like an easier option, is saying, ‘I choose an easier option.’ Disability, illness, limitation is not it. Perhaps they need to exercise more. Or if that isn’t an option, and they do need mobility help, they shouldn’t look enviously at those in more need, they need to get help themselves.

Limited mobility is not a choice, it is an all encompassing fact, that we end up with by disease, illness or an accident.

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