Going Up In The World

“It needs to be 120cm from the mattress,” a pause, “oh, it’s not.” Listening to the OT saying this under to the bed technicians, while checking the health and safety requirements, I held my breath. Surely, after all these months, I wasn’t about to fall at the last hurdle. The bed technicians who had moved the bed upstairs had a discussion with her about some adjustments. The changes were made. More measuring. I should just mention here that they were checking and changing my bed sides, cot sides as they are commonly called. They are there so that I don’t fall out of bed when I lose muscle function without much warning. They were added after I first fell out of bed due to a loss of muscle function. Part of my condition.

Back to the OT and bed technicians who are standing, hands on hips, tapping their feet, waiting for me to finish the explanation to you all. “OK guys, you carry on.” After all their adjustments the OT had re-measured and pronounced that the bed was safe. Phew! I would not be rolling out of bed, or getting caught under the bars. This last, a less likely scenario as the cot sides are covered in a mesh and foam. But, I could give it a go if they wanted.

Now I have made an assumption. Which I am told is a very bad thing to do. Such a pity that doesn’t stop most people doing it; most of the time. My assumption was that you have been following my life story, hanging on my every trial and tribulation. Basically treating me like the celebrity that I obviously should be; an oversight that will be corrected soon, I am sure.

For those who have not been hanging on my every adventure; I will want to know why. Here is a explanation of why I was awaiting the OT’s safety proclamation on my bed. It had been moved. Is that enough or do you need more? OK, so just a bit more context. We moved into a new house in June and it has been in the process of being adapted by a DFG grant for most of the time since then. Not solidly, there have been gaps. Plus we have had work done ourselves; like making the garden accessible. The DFG grant has put in a through floor lift from what was the garage into my bedroom above and added a wet room en-suite. The bedroom is not large and so a lot of the things I had in my previous bedroom will be in the converted garage below. Apart from the flooring on the converted garage a few adjoining rooms, which we held off getting done till the messy work was completed; all is now finished. Yesterday my hospital type bed was moved to my bedroom which had an H type ceiling track hoist fitted the day before. All caught up?

Only hours before the bed was moved up, I had no curtain or blind in my bedroom and I was thinking that I would get to know the neighbours a lot better. Or rather, they would get to know me. Fortunately, our neighbour fitted a blind for us in the morning and saved my embarrassment and decency. He also saved the eyes of everyone in our close.

Here I was waiting to use my new bedroom, new bed, new hoist. I had already used the new wet room. Having gone up in the lift in my shower chair; covered in a thick layer of towels. Waiting with baited breath; I’ve always wondered about that expression. Sounds more like a fishing term than being paused on the edge of excitement. Mind you, the few times I have been fishing I just ‘held’ onto the bait, not sure how to attach it to the hook. So maybe that’s were it comes from. All of which is irrelevant, stop distracting me. Now you are holding your breath, waiting for me to continue. More likely you have swiped onto the next feed.

If you are still with me. You now understand why the OT’s hesitancy over a couple of centimetres was so important. Actually, this particular OT was filling in for my usual OT who is on holiday. So I had not seen her before. Perhaps because she was covering for someone, meant she was extra careful. It occurred to me, that I was glad she did not get me to test out my new ceiling hoist. The way she measured everything on the bed, I had visions of what it could be like with my sling and hoist:

Imaginary scenario:

OT: “Patients bottom is 40 degrees from the perpendicular.”

Me: “Will this take long?”

OT: “Not many more measurements.”

Me: “That’s good, I’m getting uncomfortable.”

OT: “Ah, where is it pressing in and hurting?”

Me: “Well… you know… where slings tend to on men.”

OT: “Possible excess pressure in groin area, needs investigation.”

Me: “So is that it?”

OT: “Nearly.”

Me: “Great. Oh, that’s cold.”

OT: “Bottom hanging 12cm below sling.”

Me: “Now are you. Hey! wait a minute.”

OT: “Discovered reason for excessive groin pressure. Now fixed.”

Of course I jest, OT’s do not do the above. Anyway, at least my bed passed muster and I finally went up in the world. A feat I had waited many years to achieve. In fact I am sitting in my bed in my new bedroom writing this.

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Author: Mike Nevin

I decided to write about the funny side of being cared for. I am a full time wheelchair user with daily carers. It's my experiences with my carers that inspired this blog.

One thought on “Going Up In The World

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